Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn't a serious wound, but over the weeks it didn't heal.

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?
One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn't a serious wound, but over the weeks it didn't heal.